Contacts

Angelman New Zealand
Postal address: PO Box 128, Ngaruawahia
Phone: 07 824 7376
Email: angelman.info@nzord.org.nz


The International Angelman Syndrome Organisation (IASO)
Website: www.international.angelmansyndrome.org
Email: Melanie.Barton.IASO@angelmansyndrome.org
The IASO was founded as a world-wide 'umbrella' organisation of national Angelman syndrome associations. It is politically neutral, with no discrimination as to race, sex, colour or religion, and is non-profit-making. One of its main duties is to help translate and distribute written material on AS in several languages

Australia
Angelman Association of Australia
Website: www.angelmansyndrome.org
National President: Anne Funke
Email: amfmcon@bigpond.com.au

Brazil
Associação da Síndrome de Angelman (ASA)
Website: http://users.siteplanet.com.br/asa (5th October 2005 - currently, this link is not working)
Email: asangelman@siteplanet.com.br
International contact: Gustavo Astua - gamo@centrodecitricultura.br

Canadian Angelman Syndrome Society
Website: www.angelmancanada.org
Email: info@AngelmanCanada.org
International contact: Terry Singleton - t.singleton@shaw.ca
To educate concerned families, the medical and educational communities, the general public, and other interested organizations and individuals on the diagnosis, treatment, management and prevention of the handicapping conditions associated with Angelman Syndrome.

Denmark
Angelmanforeningen i Danmark
Website: http://www.angelman.dk
Email: angelman@angelman.dk
International contact: Vibeke Nicolaisen - angelman@angelman.dk

Finland
Suomen Angelman-yhdistys (SAY), Finnish Angelman Syndrome Society (FASS)

Website: http://www.kvtl.fi/angel/angel.htm
Email: rautu@kanetti.net
International contact: Tuula Rauhamaki - tuula@vesiliikunta.com

France
Association Francophone du Syndrome d'Angelman (AFSA)
Website:
http://www.angelman-afsa.org
Email: infos@angelman-afsa.org
International contact: José Santos - lajoanau@aol.com

Germany
Angelman e.V.
Website:
http://www.angelman.de
Email: mac.barton@t-online.de
International contact: Mélanie Barton - mac.barton@t-online.de

Israel
Irgun Mispachot Angelman (IMA)
Email:
satlow@ndsisrael.com
International contact: Shabtai Atlow - satlow@ndsisrael.com

Italy
Organizzazione Sindrome di Angelman (O.R.S.A.)
Website:
http://www.sindromediangelman.org
Email: orsa@sindromediangelman.org
International contact: Carlo Grilli - orsa@sindromediangelman.org

Japan
Japanese Angelman Syndrome Support Group (JASSG)
Email:
mimasak@attglobal.net
International contact: Masako Mizukawa - masako-m@ck9.so-net.ne.jp

The Netherlands
Dutch Angelman Syndroom Association
Prader-Willi/Angelman Vereniging
Website:
www.angelmansyndroom.nl
Email: werkgroep@angelmansyndroom.nl
International contact: Tamara Stranders - T.Stranders@fvo.nl

Spain
Asociación Síndrome Angelman de España (A.S.A)
Website:
http://www.autismo.com/angel/asa_espa.htm
Email: acapdevila@mx3.redestb.es
International contacts: Juan and Maria Palomares - jjdelamo@openbank.es

Sweden
Angelmans Syndrom Föräldrarförening (ASF)
Email:
a.lack@telia.com
International contact: Annette Lack - a.lack@telia.com

United Kingdom
Angelman Syndrome Support, Education and Reseach Trust (ASSERT)
Website:
http://www.angelmanuk.org
Email: contact@angelmanuk.org
International contact: HJ (Jim) Brennan - jim.brennan@whsmith.co.uk

USA
Angelman Syndrome Foundation (ASF)
Website:
http://www.angelman.org/angel/
Email: info@angelman.org
International contact: Hal Lippman - hlippman@usaid.gov

Contacts in Countries with no National Associations:
Egypt

Amira Khalifa - akhalifa@idsc.net.eg

Belgium and Luxembourg
Section - Angelman Afrahm
Patrick Haverbeke - angelman@belgacom.net

Ireland
Rosemary Teggin - rosemaryteggin@eircom.net

Mexico
Marina Cardoso marinacardoso@terra.com.mx
Website: http://sebastianresendiz.tripod.com.mx/angelman

Poland

Janusz Rozalski - rettsyndrom@pf.pl

 

 

 

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