Resources

Some reading and viewing resources that may be of interest to Angel families:

Title
Author
Description
Year
Books
 
A Different Kind of Brother
Renate Walsh
Growing up with an older mentally handicapped brother, Anne feels misunderstood by the whole world. She can't bear people's looks of rejection or pity and she withdraws into a dream-world of her own. Only when she meets Leah does she learn how good it is to have a real friend.
1993
A Friend Like Henry
Nuala Gardner
When Jamie and Nuala Gardner chose a puppy for their son, Dale, they weren't an ordinary family choosing an ordinary pet. Dale's autism was so severe that the smallest deviation from his routine could provoke a terrifying tantrum. But after years of constant effort and slow progress, the Gardners' lives were transformed when they welcomed a new member into the family, Henry, a gorgeous golden retriever puppy.
2007
A Parent's Guide to Developmental Delays
Laurie LeComer
Easy to understand, reassuring, and up-to-date (2006), the book covers everything concerned parents need to know. Using real-life examples and case studies along with checklists, exercises, and other hands-on advice, the book covers a range of delays and disorders that include autism, ADHD, learning disabilities, Sensory Processing Disorder, aggressive behaviour, and motor-control problems
2006
Baby Sign Language, for hearing babies
Karyn Warburton
A practical, illustrated guide that shows parents how to teach their babies simple, easy-to-remember gestures to convey thoughts, needs, questions, and answers-long before the babies can talk. Packed with useful advice, this delightful guide will help develop cognitive skills, cut down on communication frustration, and create a stronger bond between parents and babies
2004
Looking the Other Way
Stephanie Weaver
Raising children with Special Needs In Aotearoa/New Zealand. Armed with this book, parents will feel empowered to renew the struggle to cope with systems & prejudice, and be reassured by the first-hand experiences of others who have been there
1999
The Empty Room
Elizabeth DeVita-Raeburn
The Empty Room is one of those quietly revolutionary books. Through her own grief, through conscientious research and compassionate journalism, DeVita-Raeburn tells the story of a forgotten grief. In our culture, sibling grief is hidden. It is a nameless, faceless loss. DeVita-Raeburn gives these siblings a voice. And in doing so, she gives us back the story of our own lives.
2004
DVD
An Introduction to Angelman Syndrome
ASSERT
A practical information for parents and useful guidance for professionals. It includes interviews with parents and prominent Angelman Syndrome experts

 

Annual Conference Presentations:

"Reflections on AS: from diagnosis & genetics to further research" - Ellie Smith - click here

"Everything we ever needed to know we learned from an Angel" - click here

 

Click here for the Angelman Syndrome Group Forum which is housed on Google.

You will need to become a member to participate.


The UBE3A Gene and its Role in Angelman Syndrome

http://asclepius.com/angel/ube3a.htm

 

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